Should you leave or remove the ovary with Endometrioma?
I have a big lesion on my left ovary. A surgeon has told me they can keep the ovary with a high risk of recurrence or remove it and leave me with only one ovary on the right side. What would be your consideration if you were in this situation?
What are the complications of endometriosis?
Studies report endo-related complications in 90% of patients with bowel and bladder issues being the most common complications. What complications have others seen or experienced with endometriosis?
What happens to fatigue after endometriosis surgery?
Fatigue impacts 96% of patients. Does the excision of endometriosis surgery help with fatigue?
Is gaslighting more probable when someone complains about symptoms of endometriosis vs. when the same person has other issues like a headache or high blood pressure or etc.? If so, why?
Everyone is welcome to participate in the discussion.
Help!!! I need help finding a doctor in Orlando, FL
Hey guys,
I can’t seem to find any good doctors that treat endometriosis in Central Florida (Orlando) area. Can someone please list recommendations??
Real World Endo-Warrior Stories
Nothing is more powerful and authentic than an actual patient’s story. Patients with endometriosis experience the health system in a unique way that makes them doubt their pain and will cause delayed diagnosis and treatment. However, many decision-makers, doctors, and insurance companies still do not believe them. We want to dedicate this page to you, the endo-warrior who has gone through all of it. If you add your experience with endometriosis here, you help achieve two goals for the endometriosis community:
First, you are strengthening your and other patients’ stories here because it will not be only “you” or “she.” It will be several people with terrible experiences that led them to the same results: delayed diagnosis and treatment of endometriosis.
Second, you help this page get ranked first on Google search. This is important because whenever someone, including insurance companies and doctors, searches for the term “endometriosis,” this page shows at the top. Then, they see what is happening to patients, impacting their judgments and decisions. And that judgment and decision will affect many patients’ lives.
So please take a few minutes and share your unique journey of living with endometriosis and receiving care.
What are the long term side effects of lupron?
Lupron is a very commonly used medication, and almost every person with endometriosis has used it or heard its name. Although there are some serious concerns about the short and long-term complications related to Lupron and similar drugs, we have seen more of them recently. This increase in the number of drugs means there will be a growing flush of money to advertise them on platforms that patients use for their education, such as Google. So when patients search “endometriosis,” these drugs will be on the top of the search results as a treatment for endometriosis.
But why did these medications’ production, advertisement, and usage increase despite their adverse effects and discussions around them? A part of the problem is that not many people know about the long-term side effects of the drugs. You might have shared your experience elsewhere, but it is not visible to most people. This lack of stories of real people who took Lupron and similar medications has led to more people taking it without enough knowledge of the effects. And because it has become such a lucrative market, more companies make them now and educate people to take them.
This cycle of lack of accessible real-world experiences and increased production and usage of Lupron and similar drugs for endometriosis needs to stop! We need to ensure enough factual information about these meds comes from endo patients’ first-hand experience. So everyone who searches for endometriosis and these medications should learn about the actual impacts of these drugs on real patients. This information can help many patients and doctors make informed decisions about these drugs.
To address this problem, we at iCareBetter have created a dedicated page for our endo community members to share their experience with the long-term side effects of Lupron. We aim to make real-world experiences accessible, and a top result in Google searches. If you want to join this education campaign, please use the link below to write your experience with Lupron’s long-term side effects. And share this post with your circles.
Read more:
How to Find an Endometriosis Specialist for Diagnosis
Laparoscopy: A Common Treatment for Endometriosis
The Different Tests Used to Diagnose Endometriosis
A Guide to Ultrasound for Endometriosis Diagnosis
Seeking recs for good endo doc in Baltimore area for 15 year old
Hello,
I’m looking for recs for endo-smart docs in the Baltimore or in Maryland for my 15 year old. She has what may be endo symptoms like clockwork since she started menstruating 2 years ago (e.g., stabbing side pelvic pain midcycle, horrible debilitating cramps for first 24-48 hours at start of cycle, misses school each month). Ultrasound shows nothing. I am trying to gather info before her 16 yr check up in late August so i can get her pediatrician’s input and try to find a GYN who has the training needed to assess, diagnose and treat (if this is in fact endo).
In lieu of recs on specific doctors, I’d benefit from what to look for not in a surgeon per se (that is well covered on the iCare website and Nancy’s Nook), but what to look for in a GYN when it comes to training and experience. Maybe it’s the same thing? When I google “endometreosis specialists Baltimore” I find plenty of docs, but i have no idea what they’re basing this claim on.
Thank you!
SoCal endo for 16 year old
My 16 year old daughter has gone to her pediatrician and now a general Ob/GyN – both nice and great doctors but in regards to endo are in over their heads. we live in southern California in Orange County. is there an endo center or specific doctor in this area that anyone would recommend not only for endo but great for teens? I have read so many horror stories online of women having this for decades and multiple surgeries , etc so we are scared to death of not going down the correct path. she has an appt at the cedar sinai endo center but not until a couple of months away. any thoughts on the cedars sinai program?
Endometriosis Awareness Poem
Hey guys,
I’ve written some poetry about endometriosis. I’ve been really anxious about sharing it because it is so personal but I understand the importance of raising awareness and that is the main inspiration for having written the piece. I tried to cover as many aspects as possible to give more opportunities for our community to relate. I know many of you will and honestly I feel sad about that.
I would really appreciate if you could show your support by voting for my work “Unborn” please. I just want for more people to understand how difficult it is to live with these issues. I really hope I’ve done it justice.
Trigger warnings: the poem contains the topics of miscarriage, infertility, suicide.
To see the full video and vote for my work, please head to: https://www.zealous.co/zealous/opportunity/Zealous-Amplify-Mental-Health-and-Wellbeing/round-1/lucycross/Unborn/?f_work=5593003249106944&search=lush&sort=SUBMISSION_DATE&page=1&white_view=true
You just click the vote button at the top of this page and then get a confirmation email whereby you have to press on the link to confirm your vote. Scroll to the bottom of the link for the entire poem. Please feel free to share it as that is the purpose. If you like my content then you can access my Zealous profile (by clicking on my profile picture) at the above link too, where you can also give me a follow on my linked accounts there: Instagram & YouTube.
The virtual exhibition where my poetry is featured is available here if you’re interested:
Thanks in advance and sending love, as always! Xx
Endometriosis sucks because …. (fill in the black)
Please share why you think endometriosis sucks.
I am 16 and need a endo Docter near ohio
please help me
