Category Archives: Community Discussion

How did endometriosis impact your mental health?

The depth of endometriosis impacts goes beyond physical health. And many studies have confirmed that endometriosis also influences patients’ mental health. For example, those with this disease might suffer from anxiety, depression, and other mental health issues due to their battle with endometriosis. But despite the significant burden of mental health issues, not many patients and providers are aware of its presence and impacts. We invite you to anonymously share your understanding and experience of mental health and endometriosis. Please use the link in the bio.

More topics:

What was the first thing that you lost because of your endometriosis? – iCareBetter

Understanding the Link Between Endometriosis and Insomnia – iCareBetter

Explaining Endometriosis Pain – iCareBetter

Leah Williamson reveals endometriosis led to fears of missing games at Euros

read more:

https://www.theguardian.com/football/2022/dec/28/leah-williamson-reveals-endometriosis-led-to-fears-of-missing-games-at-euros?fbclid=PAAabeQqbUab9RsGfBWe1jpdf6-KS6RhJ2iVJIDRHVy1OEyOBxdg_9_VUh3og

New Study Aims to Revolutionize the Diagnosis of Endometriosis

https://www.gehealthcare.com/insights/article/new-study-aims-to-revolutionize-the-diagnosis-of-endometriosis

How did your insurance prevent you from receiving a good endometriosis care?

With endometriosis, you might find it difficult to navigate insurance companies. For example, some great doctors might not accept your insurance and the insurance denies paying for their services. The insurance companies might insist that you go to their in network provider that is not an expert in endometriosis care. This situation needs some awareness and we need people to come forward and talk about their experience. Please share how your insurance impacted your chances of receiving care in endometriosis.

Funding for Endo Treatment

I’ve had such trouble looking for ways to possibly pay for endo surgery. I haven’t and can’t work at all because of how debilitating and disabling endo is. And I highlight doubt Ill ever be able to work at all because of other illnesses. I’m already in medical debt from other specialty doctors. And I’ll need separate minimally invasive thoracic surgery after this first one.

How have you funded the out-of-pocket surgery costs?!

Two endometrial cyst

Has anyone had surgery to remove chocolate cyst from the ovaries? I do not want to loose my ovaries. I have a 6 cm cyst on my left and 9 cm on my right.

What were your endometriosis symptoms?

Canadian Specialists

While I know they are few and far between, can anyone recommend a specialist in Canada?  Ontario specifically?
thank you

How do you mentally deal with endometriosis?

How did you convince your doctor that you have endometriosis?

It is no secret that most doctors, including OBGYNs have limited knowledge and experience in diagnosing endometriosis. This puts a lot of responsibility on patients to diagnose and convince their doctor that they might have endometriosis. Convincing the doctors is essential to establish a healthy relationship and asking for further referrals. But many doctors still resist agreeing that the patient might have endometriosis despite all the evidence. So this is a common question by endo warriors “how did you convince your doctor (OBGYN or Family) that you have endometriosis?” Please share your experience.

Amy Schumer talks about living with endometriosis, a ‘lonely disease’

Amy Schummer: “It just hurts, and it’s really just a lonely, lonely disease.”

http://www.washingtonpost.com

Padma Lakshmi Says Endometriosis Left Her Occasionally ‘Bedridden’ for Over 20 Years

“Once a week, every month, I was bedridden,” the Top Chef host, 47, tells PEOPLE Now. “I got my period when I was 13 and didn’t get diagnosed until I was 36. That’s 23 years, 12 months a year, 12 weeks from, you know, that I was missing at volleyball practice, the school dance, midterm exams, helping my mom cook the family meal. All these things that’s part and parcel of being a teenage kid.”

Read more:
https://people.com/health/padma-lakshmi-endometriosis-awareness-month/

iCareBetter

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